MyPal aims to foster early palliative care for cancer patients by leveraging patient reported outcome (PRO) using digital health applications through their adaptation to the personal needs of the cancer patient and his/her caregiver(s).
Through this intervention, MyPal aspires to empower cancer patients (and their family members) in capturing more accurately their conditions, communicate them to their healthcare providers and foster rapid identification of important deviations in the patient’s state and QoL.
Overall, the foreseen advancement through MyPal reflects a paradigm shift from passive patient reporting to active patient engagement and a closedloop approach (bridging the gap between patient reporting and effective actions by healthcare providers to meet the varying patient needs) for coping with palliative care challenges in cancer.
MyPal will demonstrate and validate the proposed intervention in two clinical studies, an RCT for adults with hematologic cancers and an observational study for children suffering from solid tumors and hematologic malignancies.
The clinical studies will be conducted in diverse healthcare settings in 6 clinical sites from 5 European countries.
As a partner, the UNIWA is particularly involved in the definition of the ethics framework underlying the clinical studies and monitor ethical issues throughout the course of the project.
This ensures that the project is carried out in compliance with fundamental ethical principles, including the protection of individuals with regard to the processing of personal data.
Additionally, The participation of UNIWA focuses on the definition of the evaluation and impact assessment framework for the MyPal intervention.
Major emphasis is given on the effectiveness and cost-effectiveness of MyPal, but also (given that MyPal relies on a digital health / technological intervention) on the health technology assessment per se.
Project Τitle: MyPal – Fostering palliative care of adults and children with cancer through advanced patient reported outcome systems
Project Duration: 1 January 2019 – 30 June 2022
Project URL: https://mypal-project.eu/
Project Framework & Funding:
EU Horizon 2020-SC1-2018-Single-Stage-RTD
UNIWA budget: 150,400.00€. Total project’s budget: 3,999,308.75€
Investigator (UNIWA): Professor Elpida Pavi, Department of Public Health Policy, School of Public Health, Email: epavi@uniwa.gr, Tel: +30 213 2020232
Consortium – Partners:
- CENTRE FOR RESEARCH AND TECHNOLOGY HELLAS
- FRAUNHOFER GESELLSCHAFT ZUR FOERDERUNG DER ANGEWANDTEN FORSCHUNG E.V.
- FOUNDATION FOR RESEARCH AND TECHNOLOGY HELLAS
- LANCASTER UNIVERSITY
- MASARYKOVA UNIVERZITA
- KAROLINSKA INSTITUTET
- UNIVERSITA VITA-SALUTE SAN RAFFAELE
- GENERAL UNIVERSITY HOSPITAL OF HERAKLION
- MEDIZINISCHE HOCHSCHULE HANNOVER
- FAKULTNI NEMOCNICE BRNO
- UNIVERSITAT DES SAARLANDES
- PROMOTION SOFTWARE GMBH
- ATLANTIS HEALTHCARE UK LIMITED
- EUROPEAN ASSOCIATION OF PALLIATIVE CARE
- INTERNATIONAL CHILDREN’S PALLIATIVE CARE NETWORK
- UNIVERSITY OF WEST ATTICA
